The reason that healthcare is so alive in the social media space is simple — human
beings have a strong, possibly innate, need to connect, interact and share information about their health. That goes for patients and caregivers alike. It’s no accident that Facebook and Twitter have numerous online forums devoted to specific conditions and their treatment. Consider:
- 844,000+ people like StandUptoCancer on Facebook
- 48,000+ like Gluten FreeVille
- Rheumatoid Arthritis Warrior has 14,000+ likes
Marketing to consumers today is about reaching out to their online spaces with meaningful information they can incorporate into their everyday lives. In the highly-regulated, social space-restrictive environment created by the FDA and FTC, engaging patients and caregivers through social media to help solve your marketing problems may sound adventurous, or even downright scary to your med/legal team. 
That’s where crowdsourcing comes in.
Crowdsourcing is a way to quickly obtain feedback and direction from relevant online audiences about your campaign/communications challenge—think of crowdsourcing as a cross between a focus group and a quantitative survey. It’s a very effective tool for listening to the needs of female audiences. To better determine the role crowdsourcing could play in pharma, we decided to conduct a social experiment.
THE SOCIAL EXPERIMENT
We kept the exercise simple and designed a crowdsourcing experiment that enlisted caregivers of cancer patients. According to estimates by the Family Caregiver Alliance, 66% of caregivers are female. One-third (34%), takes care of two or more people, and the average age of a female caregiver is 48. We asked caregivers to better define their needs and perceived duties around the task of caregiving. Then we asked them what they needed from a support program. What we learned opened our eyes to the power and passion of individuals.
ENGAGING THE CROWD
A short survey consisting of just three questions was designed and pushed out to 37 different online groups across several social media channels, including Facebook, LinkedIn, and forums—all cancer-related social networks. I used my real name, my actual Gmail account (or forum-specific identity for transparency), and clearly stated that I was interested in creating better caregiver/patient support programs.










